Each centre has a Principle Investigator (PI), who is usually the doctor seeing the children with myositis. Other staff in the team include nurses and physiotherapists. Members of the JDRG are involved in many research projects. If you would like to find out more about our research projects click here. Other researchers, who are not in the JDRG can also apply for permission to use information collected in the JDCBS. All data or samples shared in this way are anonymised. New centres that are able to join this group are always welcome and interested centres should first contact the JDRG Administrator at info@jdrg.org.uk.
The full membership of JDRG can be found here : JDRG acknowledgement list.pdf
The JDRG and the Juvenile Dermatomyositis Cohort Biomarker Study and Repository, are actively involved in several National and International collaborative networks including :
International Myositis Assessment and Clinical Studies Group (IMACS)
Topic Specific Group for JDM in the UK Clinical Studies Group (MCRN / Arthritis Research UK)
Paediatric Rheumatology International Trials Organization (PRINTO)
Childhood Arthritis and Rheumatology Research Alliance (CARRA)
