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JDM Information

Patients & Parents

Study Tools

MMT8 from JDRG on Vimeo.

MMT8 from JDRG on Vimeo.

CMAS from JDRG on Vimeo.

CMAS from JDRG on Vimeo.

Data Collection Forms

Initial Presentation form - Clinic Form 1 - Version 7 Nov 2014.pdf

Clinic Visit form - Clinic Form 2 - Version 7 Nov 2014.pdf

Annual Visit form - Clinic Form 3 - Version 7 Nov 2014.pdf

Health assessment questionnaires - CHAQ-CHQa.ppt.pdf

Physiotherapy assessment - CMAS (1.3.22) November Version 2.pdf and MMT8.pdf

Flare form - Flare Form.pdf

Study Protocol and corresponding documents

Protocol - Protocol JDCBS Version 7, June 2015.pdf

Child / Young person information sheet - Child Young Person Information Sheet Version 7, June 2015.pdf

Parent information sheet - Parent Information Sheet Version 10, June 2015.pdf

Physician information sheet - Physician Information Sheet- V5.pdf

Parent / Guardian consent form - Consent - Parent Guardian V4.doc

Young person (over 16 years old) consent form - Consent - Patient over 16, V4.doc

Child (under 16 years old) consent form - Assent - Patient under 16 V3.doc

What to collect and when - Gantt chart V3 January 2015.pdf

Blood collection form - blood form JDRG v5 March 2016.pdf

Security policy - Security Policy _Appendix VI_.pdf

Discharge Form - Discharge Form (1.3.22) June 2013 V1.doc

Email Collection Form - Email address collection form V1.doc

Study Overview - JDCBS StudyOverview v1 September 2015.pdf

Other useful documents

Ethnicity definitions for new recruits - Ethnicity definitions for JDM clinic initial forms.pdf

Contributing centres to the JDRG - Participating Centres in JDRG_02.03.16.pdf

Letter to request Saliva - Saliva collection Letter for parents.doc

PRDF - JDM Brochure for PRDF.pdf

GANTT Chart - Gantt chart V4 September 2015.docx

JDRG Newsletter - JDRG 2012 newsletter.pdf

MMT8 starting positions guide- MMT8 instructions with pics.pdf

Standard Operating Procedures (SOPs)

Blood collection - JDM SOP 02 Blood Collection_ALL_Dec2011.doc

Saliva collection - JDM SOP 03 Saliva Collection_ALL_Dec2011.doc

Biopsy collection - JDM SOP 01 Muscle Biopsy Protocol_EXT_June2010.doc

Online data entry guidance

Guidance for the JDM online data entry.doc

JDRG Steering Committee

Application form - JDCBS empty application version January 2015.doc

Guidance notes for applicants - A1 Guidance Notes for Applicant Researchers.doc

Collaboration agreement to sign - Collaboration Agreement April 2009.doc

Authorship and publication guidelines - Authorship and Publications Guidelines 2012 V7.doc