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A few of the parents that are in the cohort study have kindly given their experiences of when they where diagnosed with JM.
“JDM has impacted on our family life but we try to not let it rule us”
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“He wanted to stay in the shade all the time, he just wasn’t enjoying himself. We just couldn’t understand it!” “I thought that maybe I was over reacting and all Harry had was a viral infection but deep down I knew something wasn’t right!”
“We think ourselves very lucky, she is now living a relatively normal life and attending nursery everyday”
“Since Niamh has been poorly it hasn’t stopped her from doing anything. We go on long family walks, she goes dancing and swimming every week”
“I have to say children, they can cope better than adults, they just take the day when it comes”
